Terms & Conditions

Last Updated:
July 7, 2026

Welcome to Proteus-Syndrome.org (“Website”), operated by the Proteus Syndrome Foundation (“Foundation,” “we,” “our,” or “us”).

By accessing or using this Website, you agree to comply with these Terms & Conditions. If you do not agree with these Terms, please discontinue use of the Website.


1. Website Purpose

Proteus-Syndrome.org is intended to provide educational information, support resources, advocacy, fundraising opportunities, and community information relating to Proteus Syndrome.

The information provided is for informational and educational purposes only and should not be considered medical advice.


2. Medical Disclaimer

The content on this Website does not constitute medical, legal, or professional advice.

Always seek the advice of your physician, healthcare provider, or other qualified medical professional regarding any medical condition.

Never disregard professional medical advice because of information found on this Website.


3. Use of the Website

You agree to use this Website only for lawful purposes. You agree not to:
  • Violate any applicable laws or regulations.
  • Attempt unauthorized access to our systems.
  • Upload malicious software or code.
  • Disrupt Website functionality.
  • Harvest or collect user information.
  • Misrepresent your identity.

4. Donations

Donations made through Proteus-Syndrome.org help support our mission of education, advocacy, research, and family support.

Unless otherwise stated:

  • Donations are voluntary.
  • Donations are generally non-refundable.
  • Donation processing is handled through secure third-party payment providers.
  • We do not store your complete payment information.

 

If you believe a donation was made in error, please contact us promptly.


5. Intellectual Property

Unless otherwise noted, all Website content including:

  • Text
  • Graphics
  • Logos
  • Images
  • Videos
  • Downloads
  • Documents
  • Website design


are the property of the Proteus Syndrome Foundation or licensed for use.

You may not reproduce, distribute, modify, or republish Website content without written permission.


6. User Submissions

If you voluntarily submit:

  • Stories
  • Photos
  • Videos
  • Testimonials
  • Comments


you grant the Foundation a non-exclusive, royalty-free license to display, publish, or promote those materials in connection with our mission.

You retain ownership of your original content.


7. Third-Party Links

Our Website may contain links to third-party websites.

We are not responsible for:

  • Their content
  • Privacy practices
  • Accuracy
  • Security


Accessing third-party websites is at your own risk.


8. No Guarantees

While we strive to provide accurate information, we do not guarantee:

  • Accuracy
  • Completeness
  • Availability
  • Timeliness


Website content may change without notice.


9. Limitation of Liability

To the fullest extent permitted by law, the Foundation shall not be liable for:

  • Direct damages
  • Indirect damages
  • Incidental damages
  • Consequential damages


arising from your use of this Website.


10. Privacy

Your use of this Website is also governed by our Privacy Policy.

Please review our Privacy Policy to understand how we collect, use, and protect your information.


11. Copyright Infringement

If you believe material on this Website infringes your copyright, please contact us with sufficient information so we may investigate.

12. Website Availability

We strive to keep the Website available at all times but do not guarantee uninterrupted access.

We reserve the right to modify, suspend, or discontinue any part of the Website without notice.


13. Changes to These Terms

We may update these Terms & Conditions from time to time.

Changes become effective immediately upon posting.

Your continued use of the Website constitutes acceptance of the updated Terms.


14. Governing Law

These Terms shall be governed by the laws of the United States and the State in which the Foundation is organized, without regard to conflict of law principles.


15. Contact Us

If you have questions regarding these Terms & Conditions, please contact us.

Proteus Syndrome Foundation

Website: https://proteus-syndrome.org

Email: [Insert Contact Email]

Phone: [Insert Phone Number]