Terms & Conditions
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Last Updated:
July 7, 2026
At Proteus-Syndrome.org (“Website”), we are committed to protecting your privacy and safeguarding any personal information you provide. This Privacy Policy explains how we collect, use, disclose, and protect your information when you visit our Website.
By using this Website, you agree to the practices described in this Privacy Policy.
Information We Collect
We may collect information that you voluntarily provide, including:
- Name
- Email address
- Mailing address
- Phone number
- Donation information
- Information submitted through contact forms
- Newsletter subscription information
- Volunteer inquiries
- Family stories or testimonials you choose to submit
Information Collected Automatically
When you visit our Website, we may automatically collect certain information, including:
- IP address
- Browser type
- Device type
- Operating system
- Pages visited
- Time spent on pages
- Referring website
- Date and time of your visit
This information helps us improve our Website and better understand how visitors use it.
Cookies
Our Website may use cookies and similar technologies to:
- Remember your preferences
- Improve Website performance
- Analyze visitor traffic
- Enhance your browsing experience
You may disable cookies through your browser settings, although doing so may affect certain Website features.
Donations
When making a donation, payment information is processed securely through trusted third-party payment processors.
We do not store complete credit card or payment information on our servers.
Sharing Your Information
We do not sell, rent, or trade your personal information.
We may share information only with trusted service providers who assist us in operating our Website or conducting our nonprofit activities, such as:
- Payment processors
- Email newsletter providers
- Website hosting providers
- Analytics providers
These providers are required to protect your information.
Google Analytics
We may use Google Analytics or similar services to understand how visitors use our Website.
Google Analytics may collect:
- Device information
- Browser information
- Pages visited
- Session duration
- Approximate geographic location
You may opt out of Google Analytics through browser tools provided by Google.
Email Communications
If you subscribe to our newsletter or updates, we may periodically send emails regarding:
- Research news
- Events
- Fundraising campaigns
- Educational resources
- Organization updates
You may unsubscribe at any time by clicking the unsubscribe link included in our emails.
Children's Privacy
Protecting children’s privacy is extremely important to us.
Our Website is not intended to knowingly collect personal information directly from children under the age of 13 without parental or guardian involvement.
Parents or legal guardians should contact us if they believe a child has submitted personal information.
Family Stories and Photos
Families may voluntarily submit stories, photographs, or testimonials.
By submitting content, you grant us permission to publish or display it in support of our educational and advocacy mission.
If you later wish to remove submitted content, please contact us, and we will make reasonable efforts to honor your request.
Data Security
We implement reasonable administrative, technical, and physical safeguards designed to protect your personal information.
However, no method of electronic transmission or storage is completely secure, and we cannot guarantee absolute security.
Third-Party Websites
Our Website may contain links to third-party websites.
We are not responsible for the privacy practices or content of those websites.
We encourage you to review their privacy policies before providing personal information.
Your Rights
Depending on your location, you may have the right to:
- Request access to your personal information
- Request corrections
- Request deletion of your information
- Withdraw consent where applicable
- Request a copy of the information we maintain
To exercise these rights, please contact us using the information below.
California Privacy Rights
If you are a California resident, you may have additional rights under applicable California privacy laws.
Although we do not sell personal information, California residents may request information regarding the collection and use of their personal information.
International Visitors
If you access this Website from outside the United States, you acknowledge that your information may be transferred to and processed in the United States.
Changes to This Privacy Policy
We may update this Privacy Policy periodically.
Any changes will be posted on this page with an updated effective date.
Contact Us
If you have questions regarding this Privacy Policy or how your information is handled, please contact us.
Proteus Syndrome Foundation
Website:
https://proteus-syndrome.org
Email:
[Insert Contact Email]
Phone:
[Insert Phone Number]